Family to Family

We see a lot of respiratory patients at my hospital.  Many of them are babies and toddlers that rely on a tracheostomy and/or ventilator to breathe.  Learning to provide routine care is a huge undertaking for families and requires significant time working with respiratory therapists and nursing staff.  Families are under significant stress after multiple medical procedures, long hospital stays, and many nights at bedside. I recently came across a wonderful blog called Trach Ties that documents a family’s journey bringing their daughter home and finding a new normal. It is full of lots of tips for families- everything from easier clothing, to organizing supplies, to planning for travel. I wanted to share this blog because it is an awesome example of families sharing knowledge and support over the the internet. Even children with rare diagnoses can find and communicate with one another through cyberspace.  Blogging makes the world a smaller place.  I learned a lot from this blog that I will bring back to the hospital, and I wanted to share it with fellow child lifers.

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